I don't know if I ever posted the results from all the blood work that we had done on Lillie regarding her Galactosemia. She is what they call a "dg" - she has the Duarte variant of Galactosemia, allowing her some ability to break down milk sugar. We were given the clear to nurse again at 3 weeks old. So for the past month, she's been eating at Moms.
Another round of blood work on September 17th revealed that nursing exclusively is proving too much for her to handle. The treatment: alternate soy formula with nursing and have blood work done every month to monitor how she is handling this. We also have an appointment with the genetics doctor on staff at Children's Hospital on November 6th to discuss how Lillie will be followed through her first year.
In all other respects, Lillie is perfectly healthy. What a blessing that they now screen for this and we have a treatment plan.
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2 comments:
I'm glad to hear she's doing well... eating at Moms!!! Love it! :)
She is so cute. I was wondering about her galactosemia, I'm glad you posted at update. Hopefully she continues to do so well!
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